My experience of POTS & IV fluids

I was officially diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) six years ago. Over the past nine months however my condition deteriorated significantly to the point where I could no longer walk; I could only sit up for a very short amount of time and I would spend most of the day and night sleeping. My heart rate would randomly go up to 200BPM for no reason and my blood pressure [...]

Grace’s story of beating POTS

In my mid-20’s my health started to take a turn for the worse, in so many different ways. My back pain that I had had from my mid-teens started to get worse and I was finally referred to a spinal surgeon for my scoliosis, and at 27 I had a spinal fusion. Following the fusion, my health continued to deteriorate; I suffered from digestive problems, heart palpitations, shortness of breath, near faint [...]

12 Lifestyle Modifications which work in POTS

POTS (postural orthostatic tachycardia syndrome) is commoner than we think. 1 in 3 people with a diagnosis of Chronic Fatigue Syndrome(CFS) or ME also have POTS. Similarly a large number of patients with Fibromyalgia probably also have POTS. In my practice, I have the privilege of managing the treatment of about 150 patients with POTS . I have found that lifestyle and behaviour change recommendati [...]

Holly’s story of living with POTS

I started feeling heart racing problems when I was about 8 and complained about it, I grew up knowing if I did a lot of physical exercise I needed to sit down so my heart would stop racing and hurting. In high school when I was about 15 I noticed I got dizzy when I stood up, I thought it was normal and learnt to live with it, and then I started to notice the fatigue and struggling to keep up with [...]

J’s story of living with coronary artery spasm

My first episode was while I was at work. I had been rushing around as we were very busy and short staffed but I had been sitting for half an hour when the chest pain started. So I was carted off to A&E and subsequently admitted, but not onto the cardiology ward as there were no beds. Fortunately my troponins were negative showing there had been no damage to my heart. I was sent home after bei [...]

Julia’s story of living with Lyme’s carditis and POTs

I’m extremely ill. Prior to 2010, I was a ballroom dancer and extremely active for 53. In june of 2010, I suddenly lost balance and coordination along with other symptoms. I went to the Cleveland clinic and all over trying to figure out what was happening. In 2011, I was diagnosed with pots. I kept asking why but no one was interested. I became home bound a lot and I needed help. I had horrible di [...]

Wendy’s story of living with Lyme’s carditis and POTS

It was autumn 2015, and I didn’t realise anything was wrong until I woke up from what I can only describe as an ‘absence’; I was lying on my side, on my sofa, and I was confused, disorientated. I didn’t feel ‘right’. I wasn’t myself. Emotionally, I was numb. My behaviour had been erratic recently; that week I had literally pulled the hair out of my head in rage, and then spent several days staring [...]

Richard’s story of living with POTS

I'm 46 now.. my first 'meeting' with POTS/Dysautonomia was when i was 23.. i lost 50 pounds, high heart rate, fatigue. pain.. no one knew what was going on. It took me 4 years to feel better. Its like i grew a bit out if it. It never was completely away, but i was able to study, sport..LIVE.. Then may 2008.(i was 35). i became unwell one morning and it never went away. It took 8 long tough years t [...]

Cassie’s story on living with POTS

I have had tachycardia and fainting issues since I was 15. After my bcg and hpv injections, I was struck down by flu, shingles, glandular fever and many bouts of tonsilitis, one after the other. At 15 year of age, I was diagnosed with vasovagal syncope and told I would grow out of it and to manage it on my own. I always struggled with fainting and fatigue. I went to university and worked for as lo [...]

Erin’s story of living with POTS

In my late twenties I was a homeschooling mama with three children and one on the way. I was exhausted all of the time with all over body pain. My legs felt like I was walking on toothpicks and I was worried I would collapse. I felt better when I could lay down flat, so we would often do school from my bed or the couch. When my husband would get home around 2:30 each day, I would go straight to be [...]

Emily’s story of living with POTS

When I first realised something wasn’t ‘normal’ I was 20 years old, and training to become a paramedic. My very early symptoms were palpitations, fatigue, hot and cold sweats (especially during the night) and bladder incontinence- also a night time issue. Months later I developed recurrent chest pain and breathlessness, and thats when i realised i needed to get this seen to! I’d put off going to t [...]

Samantha’s story of living with POTS

When you live with POTS, a form of dysautonomia, or dysfunction of the autonomic nervous system, every day is a battle. From getting out of bed, to brushing your teeth, to showering, to getting to work and school... these simple tasks that so many often take for granted are often impossible for those who live with this uncommonly heard of syndrome. This is my story on finding out that my own body [...]

M’s story of living with POTS

I am a 51 year old woman and college professor. I started with occasional chest pain in my late 20s. It was always attributed to costocondritis, dehydration, or anxiety. My tests were always normal. This continued a couple of times a year until my early 40s. I then developed intermittent lightheadedness and a racing heart , often worse around certain times of my menstrual cycle, sometimes accompan [...]

K’s story of living with POTS

Pre-POTS Before POTS engulfed my life, I was an active stay at home mother.  I ran four to six miles a day followed by yoga or pilates.  I was athletic and played numerous sports in high school.  I then went college and majored in Psychology/Sociology.  I wanted to be a counselor.  Before going to grad school, I met my husband on a blind date and married him fifty-two days later.  Three months aft [...]

Beth’s story of living with POTS

For me, mine started with a sinus infection. I had the head cold for a few days when I noticed that I was becoming very short of breath, extremely fatigued, and had pretty severe chest pains. After about two weeks, the head cold had gone away, but the new symptoms remained and I started having numbness in my hands and feet, which was when I called the doctor. The doctor’s office declined to see me [...]

D’s story of being diagnosed and living with POTS

I have had symptoms of pre-syncope for as long as I can remember. My mother was a nurse so she would just tell me that I had postural hypotension and to get up slowly. This started as far back as when I was 8 years old. I also have always had gastrointestinal issues, whether it was just an upset stomach daily to as bad as severe gastroparesis. That has mostly resolved after my gastric bypass. I wa [...]

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