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So far Story Submitted has created 41 blog entries.

My experience of POTS & IV fluids

I was officially diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) six years ago. Over the past nine months however my condition deteriorated significantly to the point where I could no longer walk; I could only sit up for a very short amount of time and I would spend most of the day and night sleeping. My heart rate would randomly go up to 200BPM for no reason and my blood pressure [...]

How changing my diet helped my heart palpitations: Ivana’s story

In regard to your FB post I'd like to share what I've found to be related to less ectopics in terms of diet. First of all, four months ago I had an ablation for my SVT and due to going through massive panic attacks from the whole thing, my EP left me on Bisoprolol for a few more months. I am now on 1.25 mg and will taper off in the next 2 months. I noticed some pretty strange ectopics (5 in a row) [...]

How changing my diet helped my heart palpitations: Amy’s story

I am writing to you to share my experiences with nutritional choices and ectopic beats. I have suffered from Paroxysmal Supraventricular Tachycardia and ectopic beats since 1994 (14 yrs old). I did not take my diet seriously until 2014, when my PSVT started getting worse, and I wanted to avoid ablation. I grew up eating the standard American diet. In 2014, I started taking magnesium supplements fr [...]

C’s story of living with Lyme Carditis

Dear Dr Gupta,  I saw your post on Facebook regarding wanting to hear from patients with Lyme disease. I thought I would get in touch as I think it's important to raise the profile of Lyme disease, and my initial contact was with cardiology which might be interesting for you. Clinical history: I have a long history of being bitten by ticks in Sweden, where I have received tick bites dozens of time [...]

Holly’s story of living with POTS

I started feeling heart racing problems when I was about 8 and complained about it, I grew up knowing if I did a lot of physical exercise I needed to sit down so my heart would stop racing and hurting. In high school when I was about 15 I noticed I got dizzy when I stood up, I thought it was normal and learnt to live with it, and then I started to notice the fatigue and struggling to keep up with [...]

J’s story of living with ectopic heart beats

I've had ectopics for 6 years. I also have SVT once-twice a year, but it does not bother me and my cardiologist says it is not dangerous. My ectopics cause a severe anxiety and agoraphobia. I try not to give up, but it's bigger than me. They go away when I work, when I do sports (I ride a horse everyday) but after that I just get nervous and start to panic. Usually I have 0-10 ectopics a day, but [...]

L’s story of living with ectopic heart beats

My ectopics are bad some days and not noticeable other days; caffeine is a definite no! I find that taking salt baths help with ectopics/palpitations, the bath salt contains magnesium, potassium and calcium and it’s absorbed into the system When they do happen, my ectopics feel like a pause and then a thud followed by a quiver type feeling until my heart rhythm returns to normal - sometimes I get [...]

A’s story of living with ectopic heart beats

I've had my ectopics for about 4 years, mostly PVCs. Magnesium helped tremendously to reduce them for about 3 years, and then they came back with a vengeance almost a year ago. Magnesium alone was not helping anymore. I had my cardiologist perform some more thorough testing including an echocardiogram and Holter monitor. It was confirmed that I was having hundreds to thousands of extra heart beats [...]

G’s story of living with ectopic heart beats

Mine started when I was 20 I am now 64. I can identify certain triggers alcohol and caffeine being the main ones and cut these out of my life at a very young age . It has taken me until the last couple of years to believe anxiety/ stress has something to do with it but I do believe it does . I take a calcium channel blocker and magnesium taurate and although not gone have improved my condition dra [...]

S’s story of living with ectopic heart beats

I have read messages from the young and the old, people who endured Ectopics for years and some some like myself who have only recently become aware of them. I have tried just about everything, from the scientific to the bizarre, but nothing truly gets rid of them. I have come to the conclusion if they have been check and double checked by cardiologist and they are sure they are doing no harm, the [...]

I’s story of living with ectopic heart beats

I had an ablation 5 years ago after having 2 episodes of racing heart (4 hours at 210bpm). The ablation was s success but after it I started getting ectopic beats. I’ve had a further two ablations to try to alleviate the ectopics without success. For the past three years I’ve tried lots of things from magnesium to breathing exercises but nothing has helped . I get ectopics constantly and they can [...]

J’s story of living with coronary artery spasm

My first episode was while I was at work. I had been rushing around as we were very busy and short staffed but I had been sitting for half an hour when the chest pain started. So I was carted off to A&E and subsequently admitted, but not onto the cardiology ward as there were no beds. Fortunately my troponins were negative showing there had been no damage to my heart. I was sent home after bei [...]

B’s story of living with microvascular angina

I'm 36 years old. Mom of 2 precious children (7 and 5 years of age). I was an extremely active elementary school teacher but I am currently on disability since being sidelined by chronic angina in 2015. I am writing to share my story about living with coronary microvascular disease. It is notoriously difficult to diagnose and even more difficult to treat and unfortunately I have experience with bo [...]

B’s story of living with ectopic heart beats, SVT and vagal AF

When your rhythm is a dancer Living with heart rhythm disturbances It started around four years ago. I am in the middle of my 40s, married, father of two children and successful in my job. I suffered from some kind of burnout due to heavy workload and as a consequence thereof I had some trouble with my stomach and heartburn. My GP sent me to hospital for some days to get a clinical internist check [...]

Julia’s story of living with Lyme’s carditis and POTs

I’m extremely ill. Prior to 2010, I was a ballroom dancer and extremely active for 53. In june of 2010, I suddenly lost balance and coordination along with other symptoms. I went to the Cleveland clinic and all over trying to figure out what was happening. In 2011, I was diagnosed with pots. I kept asking why but no one was interested. I became home bound a lot and I needed help. I had horrible di [...]

Lynne’s story of living with Lyme’s carditis

I first became ill July 2016 after a vacation in the woods. Never saw a tick but I had a small bullseye. I knew nothing about lyme disease so I never saw a doctor. I have almost all the symptoms of a tick borne illness. My chest pain and fast heart rate started in November 2016. My ECG changed but nothing was ever found linking my heart as the problem. I was told its stress, depression, esophageal [...]

Wendy’s story of living with Lyme’s carditis and POTS

It was autumn 2015, and I didn’t realise anything was wrong until I woke up from what I can only describe as an ‘absence’; I was lying on my side, on my sofa, and I was confused, disorientated. I didn’t feel ‘right’. I wasn’t myself. Emotionally, I was numb. My behaviour had been erratic recently; that week I had literally pulled the hair out of my head in rage, and then spent several days staring [...]