My experience of POTS & IV fluids

I was officially diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) six years ago.

Over the past nine months however my condition deteriorated significantly to the point where I could no longer walk; I could only sit up for a very short amount of time and I would spend most of the day and night sleeping. My heart rate would randomly go up to 200BPM for no reason and my blood pressure would drop. I had no quality of life at all and I was basically just existing in my bedroom 24/7.

At this point my Cardiologist recommended weekly IV saline infusions to try to help me regain control over my symptoms.

I now have two litres of saline every week and it has completely changed my life.

For thirty six hours after the fluids I can walk around independently and I experience hardly any POTS symptoms.

It is the first time in six years that I can be on my feet for longer than a few minutes.

Even though it’s only one day each week this has been incredible and greatly improved my quality of life. For a day I can walk around my house, spend time in the garden and carry out physiotherapy sessions.

After a month of regular IV fluids I have begun to notice the long term permanent improvements starting to take effect. My fatigue has massively improved; I am no longer sleeping for most of the day. The severe headaches I have suffered for six years are considerably better. I can now sit up for longer periods of time without becoming symptomatic.

IV fluids have also enabled me to carry out regular physiotherapy sessions each day and I am finally getting stronger.

By continuing to use IV fluids in combination with physiotherapy I can hopefully build up to having a normal life again.

 I still have a lot of dreams that I want to achieve and for the first time in six years with the use of IV fluids and physiotherapy I finally have hope that I might be able to do this.

Thanks to IV fluids I no longer just exist, I am living again.

 

Thank you to Sam for sharing this brave and empowering story. 

For more information on POTS, please watch this video:

Keywords: POTS; IV fluids; I.V saline

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6 Comments

  1. Jackie 24th February 2021 at 11:46 pm - Reply

    Thank you for posting this! I’m just now getting into the more severe symptoms of POTS and am seeking an official diagnosis, but this gives me hope! Thanks!!

  2. Nicole Johnson 31st March 2021 at 1:37 pm - Reply

    Thank you for this post & look forward to more regarding POTS. I am currently going through all different tests through my cardiologist. He is currently sure i have POTS as i have all the symptoms but difference with my symptoms compared to the normal POTS symptoms is that i have low blood pressure aswell as low heart rate. When i stand BP drops even lower, heart rate may increase slightly but still low or borderline normal at its best.
    Symptoms started when i had Gastric Sleeve surgery in 2016 but now gotten considerably worse & effective everyday life.

  3. Nagla 26th June 2021 at 12:43 am - Reply

    Iam so happy for you iwish you are doing well
    For how long did you take the iv?

  4. Misty Trimmer 4th August 2021 at 3:47 pm - Reply

    I have suffered since 11/2019 I had a horrible episode as I call it and was diagnosis with vestibular disorder. I truly believe I was miss diagnosed and recently since having covid I am sick again with the same exact symptoms. I do suffer from very low blood pressure as well. I recently did a tilt table test and was confirmed I have pots. I was opposite and when lying back I thought I was dying. I wish you were in va

  5. IV therapy 5th August 2021 at 1:43 pm - Reply

    Thank you for sharing your story. I am glad it worked for you and you are feeling better. IV treatments really are very helpful. I have never experienced POT but I did receive IV treatment for a terrible common cold and I was as good as new with in just a couple of minutes of receiving IV treatment.

  6. Simpleiv 28th August 2021 at 2:04 pm - Reply

    Thankyou for sharing your experience of POTS & IV fluids. IV treatments really are very helpful.

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