C’s story of living with Lyme Carditis

Dear Dr Gupta,  I saw your post on Facebook regarding wanting to hear from patients with Lyme disease. I thought I would get in touch as I think it's important to raise the profile of Lyme disease, and my initial contact was with cardiology which might be interesting for you. Clinical history: I have a long history of being bitten by ticks in Sweden, where I have received tick bites dozens of time [...]

Julia’s story of living with Lyme’s carditis and POTs

I’m extremely ill. Prior to 2010, I was a ballroom dancer and extremely active for 53. In june of 2010, I suddenly lost balance and coordination along with other symptoms. I went to the Cleveland clinic and all over trying to figure out what was happening. In 2011, I was diagnosed with pots. I kept asking why but no one was interested. I became home bound a lot and I needed help. I had horrible di [...]

Lynne’s story of living with Lyme’s carditis

I first became ill July 2016 after a vacation in the woods. Never saw a tick but I had a small bullseye. I knew nothing about lyme disease so I never saw a doctor. I have almost all the symptoms of a tick borne illness. My chest pain and fast heart rate started in November 2016. My ECG changed but nothing was ever found linking my heart as the problem. I was told its stress, depression, esophageal [...]

Wendy’s story of living with Lyme’s carditis and POTS

It was autumn 2015, and I didn’t realise anything was wrong until I woke up from what I can only describe as an ‘absence’; I was lying on my side, on my sofa, and I was confused, disorientated. I didn’t feel ‘right’. I wasn’t myself. Emotionally, I was numb. My behaviour had been erratic recently; that week I had literally pulled the hair out of my head in rage, and then spent several days staring [...]

Chris’ story of living with Lyme carditis

In 2011, after a summer full of trail running in the Northeast US, and tons of tick bites including one that was fully engorged and tough to remove, I suddenly became very ill with a fever of 105, a pinpoint rash covering my entire body, and a swollen throat. Thinking I had strep, I visited a family doctor who informed me she thought it was Lyme and ran a basic ELISA test (which came back negative [...]